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In December of 2016 I was diagnosed with fibromyalgia. Doctor after doctor kept telling me it was all in my head and that I was just depressed but I kept pressing the matter until finally my new PCP finally believed me and agreed that it was fibromyalgia
Let me tell you. It’s a frustrating illness to say the least. Most people think that because they can’t “see” the illness then I must be faking to get attention. Other people think I’m just being lazy. It’s hurtful and unfair . I want to bring more awareness to this chronic illness. So here is a list of some of the many problems people with fibromyalgia face:
Fibro Fog
Due to “fibro fog”, people with fibromyalgia tend to forget words, even in the middle of talking. I can’t tell you how many times this has happened to me and it can be quite embarrassing.
I have the worst memory ever. I can forget a conversation I have had with someone only moments later.
Pain
This is a given. Pain is the number one symptom of fibromyalgia. I am 34 but sometimes (okay, all the time….) feel like an 85-year-old getting out of bed! Morning stiffness is the worst. There are days it takes me quite a bit of time just to get out of the bed. Then once my feet hit the floor I’m in pain because my feet ache, my knees are killing me and I just want to crawl back into bed. (I could so easily fall back into my depression because of this but I haven’t yet. Praise the Lord!)
Fatigue
I am not exaggerating when I say I’m tired ALL THE TIME! It doesn’t matter how much sleep I get….I wake up tired. I go to bed tired. I’m always tired.
I guess what I want people to know is that fibromyalgia is REAL! It exists and it hurts to hear “Oh you’re just lazy.” “Oh, you just want attention.” And here’s my favorite: “But you don’t LOOK sick!” To which one day I WILL respond “Yeah and you don’t LOOK stupid but here we are….(Okay I probably will never say that…..it’s just not in my nature to be mean like that.)
I never asked for this and I don’t understand why I have to suffer through it but by God’s grace I will keep on moving forward day by day.
I don’t usually try to sell things when I am talking to fellow bloggers but I am working with a product line that many people have said has given them relief from fibromyalgia. My daughter just started using it and I’m going to be asking her if it is doing anything for her. She also has fibromyalgia. I welcome you to visit my website at http://www.myrainlife.com/pgard7 where there are many testimonials about the effectiveness of this product. I know how devastating it can be. I should have seen what my daughter has gone through. I’m sure we’ll be praying for you Leigh
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Thank you! I will definitely check it out!
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People have little understanding or compassion for “invisible” disabilities.
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That is so true. And it’s so sad.
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Thank you for sharing this. I’ve always wondered what fibromyalgia was exactly. I appreciate you explaining this!
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I used to have lots of fibromyalgic type pain, but when I talked to my doctor, he said he didn’t believe in it. Yeah, SO frustrating. I had chronic fatigue for 5 years, and I used to cry out to God for healing, and it was so discouraging, and yes, sometimes depressing that it just kept on going on for so long.
Then in God’s providence, I read about a doctor that was helping people with my symptoms with some supplements and a gluten-free diet. I wanted to know more about it, and the next day a student in my child’s class was eating a gluten-free breakfast bar, so I started to talk with his mom and dad. The dad has fibromyalgia and said that as long as he eats gluten-free, he almost never has a flareup. Anyway, I started the eating gluten-free journey (and mostly dairy free also), and within three days the pain and stiffness and tightness in the muscles of my neck and shoulders, that had been that way so long that I couldn’t remember when they were not that way, loosened up. I was convinced. I’ve been strictly gluten-free ever since, except for a couple of times when I wondered if I had just imagined it all because I felt so great, and I tried eating something with gluten in it, and the symptoms came right back with a vengeance. I’ve also accidentally eaten gluten, and it’s no fun, that’s for sure.
Maybe you could try it for a couple of weeks and see if it helps you?
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Oh wow! That’s really interesting! Thank you so much! I will look into it!
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Ok, super! I hope it helps you! You’ll most likely have to do research online since most doctors don’t know much about nutrition for healing except for diabetes and heart disease. You can find a lot of info on what not to eat (i.e. what had gluten in it) if you Google http://www.celiac.org .
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