Posted in fibromyalgia

Fibro Fog

Fibro fog – also known as fibromyalgia fog and brain fog – is a term commonly used for the cognitive difficulties that can occur with fibromyalgia.

Fibro fog can manifest itself in different ways in different people but some of the most common symptoms include:

  • short-term memory loss
  • misplacing objects
  • becoming easily distracted
  • forgetting plans
  • difficulty carrying on conversations
  • inability to remember new information

Lately my fibro fog has gotten worse. I think a trip to my doctor is in the future to see if there is anything that can be done. I’ve read that certain medications can help. As much as I don’t want to be on another medication, if it will help with this fibro fog then I’m all for it!

I have such a hard time remembering words. I forget things constantly. My memory is just plain awful. It’s really annoying, actually. I’m only 35 years old for crying out loud.

I don’t say all of this to get your pity but rather your prayers! I want so badly to memorize Scripture to help me when I’m feeling down and depressed about all of this. But my brain just won’t let me. I can remember bits and pieces of Scripture but not the entire verse.

So you guys, pray for me as I struggle with this stupid fibro fog.  I am determined to not let it bring me down any longer.

Image result for fibro fog

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Posted in adhd, bible verses, bipolar, disability, fibromyalgia, mental disorders

Strong Enough

Image result for bipolar and adhdI hate being bipolar. I hate having ADHD. I struggle constantly with rambling thoughts, racing through my mind. I’m restless, constantly. I can’t focus on a given task for longer than a few minutes. I get distracted and will start several tasks, not finishing them because I get bored and move on to something else. Having fibromyalgia doesn’t help either. I live in a constant state of restlessness, chronic fatigue and pain, and irritability.

Honestly? I’m exhausted. It’s exhausting living like this.

But I know without a doubt that my God is with me through all of this. He is with me in the pain, in the irritability. He is with me through all my rambling thoughts. He is with me as I struggle to pray because I can’t focus long enough. He knows the words I am trying to say.

It’s been almost 3 weeks since my disability hearing. I haven’t heard anything yet. I know it can take a while so I just have to learn to be patient, which let’s face it, is NOT a strong suit of mine. But God is with me.

God is with me even now as I struggle to write this, as I force myself, with great difficulty, to get this blog post finished. The words just won’t come.

God is with me in the good days and the bad ones.

God is with me wherever I go.

Some verses that comfort me when I’m feeling this way:

Then Jesus said, “Come to me, all of you who are weary and carry heavy burdens and I will give you rest.”

Matthew 11:28 (NLT)

 We are hard pressed on every side, but not crushed; perplexed, but not in despair; persecuted, but not abandoned; struck down, but not destroyed.

2 Corinthians 4:8-9 (NIV)

 

I took a break from writing this and turned on some music and the song “Strong Enough” by Matthew West came on. I find it fitting. 🙂

Strong Enough

Matthew West

You must
You must think I’m strong
To give me what I’m going through
Well, forgive me
Forgive me if I’m wrong
But this looks like more than I can do
On my own
I know I’m not strong enough to be
Everything that I’m supposed to be
I give up
I’m not strong enough
Hands of mercy won’t you cover me
Lord right now I’m asking you to be
Strong enough
Strong enough
For the both of us
Yeah
Well, maybe
Maybe that’s the point
To reach the point of giving up
‘Cause when I’m finally
Finally at rock bottom
Well, that’s when I start looking up
And reaching out
I know I’m not strong enough to be
Everything that I’m supposed to be
I give up
I’m not strong enough
Hands of mercy won’t you cover me
Lord right now I’m asking you to be
Strong enough
Strong enough
‘Cause I’m broken
Down to nothing
But I’m still holding on to the one thing
You are God and
You are strong when
I am weak
I can do all things
Through Christ who gives me strength
And I don’t have to be
I don’t have to be strong enough
Strong enough
I can do all things
Through Christ who gives me strength
And I don’t have to be
Strong enough
Strong enough
Oh, yeah
I know I’m not strong enough to be
Everything that I’m supposed to be
I give up
I’m not strong enough
Hands of mercy won’t you cover me
Lord right now I’m asking you to be
Strong enough
Strong enough
Strong enough

Posted in adhd, bible verses, bipolar, disability, fibromyalgia, grace, mental disorders, phobias

Disability Hearing

Well, I had my hearing today to determine whether or not I can get disability. It went fairly well. My lawyer seems to think I have a great case and have a good shot at winning.

Sorry I haven’t posted lately. I’ve been so distracted about this hearing and haven’t been able to focus on anything but that.

But now it’s over. And so the waiting game begins……

I discovered a Bible verse last night as I was reading that fit my situation perfectly. It is found in 2 Corinthians 12:9

But he said to me, “My grace is sufficient for you, for my power is made perfect in weakness.” Therefore I will boast all the more gladly about my weaknesses, so that Christ’s power may rest on me.

No matter what the decision by the judge, God’s grace is sufficient for me. He will get me through this and He hasn’t left me for one minute. He’s by my side always.

Another verse I found comforting is found in Philippians 3:20-21:

20 But our citizenship is in heaven. And we eagerly await a Savior from there, the Lord Jesus Christ, 21 who, by the power that enables him to bring everything under his control, will transform our lowly bodies so that they will be like his glorious body.

My body may be failing me right now but soon I will have a new body! My citizenship is not here on earth, it’s in Heaven where Jesus awaits me.

 

How is YOUR day going?

 

Posted in fibromyalgia

My Battle with Fibromyalgia

Photo by rawpixel on Unsplash

Most of you know that I struggle with fibromyalgia, a chronic illness that causes widespread body pain, fatigue and cognitive difficulties (“fibro fog”)

So what CAUSES fibromyalgia? Doctors don’t know for sure what exactly causes it but do believe a number of factors play a role:

  • Genetics
  • Infections (like mono which I contracted in college. The Epstein Barr Virus, which causes mono,  stays in a person’s system for the rest of their life but .)
  • physical or emotional trauma (like the seizure I had which resulted in me breaking my collarbone)

Common Symptoms:

  • widespread pain
  • jaw pain and stiffness
  • stiff joints and muscles in the morning
  • headaches
  • irregular sleep patterns
  • irritable bowel syndrome (IBS)
  • difficulties with memory and concentration, known as “fibro-fog”
  • fatigue

They are so many more symptoms. Not every person who has fibromyalgia deals with the same symptoms as someone else. It varies from person to person, which is why I believe it’s so hard to diagnose.

Researchers believe repeated nerve stimulation causes the brains of people with fibromyalgia to change. This change involves an abnormal increase in levels of certain chemicals in the brain that signal pain (neurotransmitters). In addition, the brain’s pain receptors seem to develop a sort of memory of the pain and become more sensitive, meaning they can overreact to pain signals.

—-Mayo Clinic

It’s a daily struggle, that’s for sure.

For anyone who has a chronic illness, some days can be just plain awful. Once in a while we’ll have a good day but I know for me, that after that “good day” the next few are bad. And why? Well for me,and probably most people, it’s because we did too much on that “good day.” We did more than we should have

I’ve been struggling with fibromyalgia since around 2008 when I was living in Nashville, TN. My doctors there were ruling out other illnesses and trying to come up with a plan when I had to abruptly move back home to Norfolk, VA.  So as I tried to  transfer my medical records to a doctor here, I discovered the doctor I chose didn’t believe in fibromyalgia and told me it was all in my head.

Photo by Marc Schäfer on Unsplash

The doctor after that told me the same thing. I couldn’t find a doctor who would believe me. It was all in my head according to them! Until 2016. This doctor finally believed me! He told me that fibromyalgia was indeed a real illness. I am currently being treated by him. He’s a great doctor who takes the time to listen to his patients. He genuinely cares for his patients.  I told him that if he ever left to start his own practice, I would be following him. LOL

I think my biggest frustration with fibromyalgia, besides the body pain and fatigue, is the memory issues. I have the worst memory. I get words mixed up and half the time can’t remember what I was trying to say. It’s so annoying. That’s why sometimes I go for days without a blog post because the words just won’t come or they get mixed up and I just get so frustrated that I don’t write.

(Maybe I should write through the frustration! It’s a thought! I’ll have to give it a try!)

I don’t understand why I must have fibromyalgia and all these other health problems (bipolar disorder, ADHD, PCOS, anxiety, depression) but I know that God is in control and will help me fight these battles.  Perhaps He’s allowing me to go through this so that I may grow closer to Him, reaching out to Him always. To learn to depend on Him always.

Cast all your anxiety on Him because He cares for you

I Peter 5:7

 

 

 

 

Posted in adhd, bible verses, bipolar, Faith, fear, fibromyalgia, mental disorders

Ramblings

Although I will not apologize for being sick (because it makes no sense to apologize for something you have no control over), I will apologize for my rant yesterday. I was angry and upset and just needed to vent.

People have told me to “change my mindset.” I’ll admit, it angered me at first but maybe they’re right. However, changing my mindset doesn’t change the fact I suffer from a chronic illness and need help.

I will do my best to be more positive about my situation. I want to be positive. I really do. It’s just a struggle sometimes.

I don’t understand why I must have fibromyalgia and all these other health problems but I know that God is in control and will help me fight these battles.  Perhaps He’s allowing me to go through this so that I may grow closer to Him, reaching out to Him always. To learn to depend on Him always.

Cast all your anxiety on Him because He cares for you

I Peter 5:7


My disability hearing is June 27th, at 9:15. I am very, very nervous. Because of my age I’m afraid I won’t receive a favorable outcome. I’m afraid the judge will look at me and figure I’m too young and that there are jobs out there I can do. But….there aren’t.

I can’t work retail anymore because I can’t stand on my feet for long periods of time anymore. And in retail they don’t let you sit down.

I can’t work in an office setting because I can’t sit down for long periods of time either. It’s a constant battle. I sit down for long periods of time and I get stiff. I hurt. My knees get totally stiff. I go to stand up and can barely walk.

I’m constantly tired. I actually take naps almost every day because it helps.  I have to remind myself that it’s NOT laziness. I am resting my body. I know what my body needs.

I have a very hard time focusing on tasks. I get distracted very easily and end up getting up and finding something else to do. Then I get bored with that and move on. It’s a never ending cycle. It’s frustrating. But I’m trying hard to fight through it.

I guess what I’m saying is that I will try to change my attitude. It doesn’t change my situation and my problems but it will help get me through the day. I will rely on God more. I will lean on Him for support and trust in Him that He will get me through this.

A verse I’ve been reading nearly every day is found in Mark 11:24:

Therefore I tell you, whatever you ask for in prayer,believe that you have received it and it will be yours

Another verse that has been helping me is found in Psalm 37:4:

Take delight in the Lord, and he will give you the desires of your heart.

I’m praying hard for a favorable outcome at my hearing next Wednesday. But no matter what, I’ll keep trusting my Lord.

GOD is in control! He is with me in this storm and He will see me through. I don’t know the future but God does and He knows what’s best for me. I will praise Him in this storm!

I lift my eyes unto the hills
Where does my help come from?
My help comes from the Lord
The maker of heaven and earth

–Casting Crowns, “Praise You In This Storm

 

Posted in adhd, bipolar, fibromyalgia, mental disorders

A Few Thoughts…

I’d like to take the time to share something that’s been on my heart the past few days. I am currently down with the stomach bug so between binge watching Netflix and reading I’ve been doing some thinking. It’s more of a rant so I’m warning you now. I just need to get this off my chest.

Most of you know that I struggle with fibromyalgia, a chronic illness that causes widespread body pain, fatigue and cognitive difficulties (“fibro fog”) I also suffer from bipolar disorder, ADHD, PCOS, anxiety and depression.

I physically and mentally CANNOT work at this present time. I have applied for disability and have a hearing next Wednesday, June 27th. My lawyer thinks I have a very good chance at winning due to all my health issues.

However, most people look at me and think I’m just being lazy and think I just don’t want to work.

“Change your mindset” they tell me. “You’ll feel better”

It’s not about my “mindset.” I physically cannot work. Don’t you think I WANT to be able to work and provide for myself? Don’t you think I feel ashamed that I can’t provide for myself? That I can’t help out more around the house? It’s downright embarrassing.

You know what though? I shouldn’t feel ashamed about any of this. I have health problems. I didn’t ask for them.

I want people to know how badly it hurts when I’m called lazy.

It’s not laziness. I just wish I could get people to understand this.

The pain is real, folks. And words hurt.

 

Posted in adhd, bipolar, Faith, fear, fibromyalgia, mental disorders

Struggles of a Bipolar Christian

Photo by Andrew Neel on Unsplash

I sit here at my laptop and practically beg for the words to come. I want to write something good….something practical….something that will help someone else.

But the words just won’t come. I sit and stare at the blinking cursor and get agitated because the one thing I used to be good at, the one thing I could always count on was my writing. I used to have the ability to sit down and write til my heart was content.

Now it just feels forced.

I’ve always been told to “write what you know.” A problem I have with that is “what do I know??” “How do I know what I know?”

I am my own worst critic. I’ve been having a bit of a relapse with my bipolar disorder so that coupled with the ADHD is causing me to doubt myself.

Please bear with me as I struggle to get through this episode of self doubt and feelings of inadequacy.

(pity party table for 1?)

Perhaps I AM having a bit of a pity party. I’m sorry, I will try to do better.


I came across this verse in Philippians that really made me stop and think:

Do nothing out of selfish ambition or vain conceit. Rather in humility, value others above yourselves, not looking to your own interests but each of you to the interests of others.

Philippians 2:3-4

Maybe that’s why I’m having trouble finding the words. I’m trying to write for ME and not God. I know I’ve recently written about this before but I’m still struggling. Struggling with finding the right words.

An open notebook on a wooden surface in front of a laptop
Photo by Nick Morrison on Unsplash

I want my words to mean something to someone. I want my words to bring glory to God.

I want my words to point people to Jesus.

But my mind is all over the place. My mind races constantly and getting words out is a constant struggle. It’s taken me forever just to write this post. I’ve written a little then stopped to do something else, come back and written some more.

Can I ask all of you to please pray for me? I know this post has been all over the place but that’s the trouble with bipolar episodes. My mind races and I flit from one thought to the next in seconds.

This is the struggle of a bipolar Christian.