Landen’s parents just posted this latest update about 45 minutes ago. Please pray for this family!
“We found out today that Landens liver is failing rapidly. It looks like Landen will be going home to be with Jesus soon. We are relieved that soon Landen will be completely well but saddened about the time of separation we will have from him. We thank God for using his life to be an inspiration to so many, none more than his mama and daddy.
We appreciate all of your love, prayers, and support for our family. Please continue praying for all of us during this time. #landensstory”
Hey friends! I have a big prayer request for you all.
I ask that you remember me on Wednesday and Thursday as I am having some heart tests performed. On Wednesday, I am having an Echocardiogram and will be given a heart monitor to wear for two days. On Thursday, I’m having a Nuclear Stress test.
I think I mentioned a while ago that in 2005 I was admitted to the hospital because it was found that I had Wolfe Parkinson White syndrome or WPW. Basically with this condition, ” there is an extra electrical pathway in the heart. The condition can lead to periods of rapid heart rate (tachycardia).” The doctors performed a catheter ablation, which “zapped” the extra electrical pathway.
It is very rare but the condition can come back. It can even cause Atrial fibrillation (Afib)
Anyways, with all that said, lately, I’ve been having issues with racing heart and palpitations, with shortness of breath. So these tests are going to see what’s going on with my heart.
So please say a prayer for me that we figure out what’s going on!
Update on Landen (as of 8 hours ago)
Landen is stable. He had a stable day and night yesterday for the most part.
He has been in pain and very uncomfortable at times so he has needed more meds. Thankfully, he is resting comfortably at the moment.
They are concerned about a few things so they are doing an echocardiogram, ultrasound of his stomach, and possibly an endoscopy today.
This journey is exhausting and the fight has been long. We are tired but we will continue persevering and seeking God for Landen’s healing. Please continue persevering in prayer with us. God is able! #landensstory
“To You, O Lord, I lift of my soul. O my God, I will trust in You…” Psalm 25:1-2a
Hey y’all! Just wanted to share an update on Landen. Keep on praying for this sweet boy!
The plan is to extubate tomorrow! He is breathing mostly on his own. He is on very minimal vent settings.
He is getting CRRT (Continual Renal Replacement Therapy) today and we hope to go to intermittent hemodialysis on Sunday or Monday.
If all goes well next week we hopefully will be transported back to Levine Children’s the following week.
He has been more awake and they are weaning sedation more today.
Please continue praying! Specifically that everything goes well with extubation, his lungs would heal, kidneys would function, stem cells would produce healthy t-cells, all viruses would be eliminated, and NO MORE SETBACKS! God is able! #landensstory
Just wanted to give an update on Landen…this is from this morning.
Good morning…Landen had a stable night and we all rested well. He got very uncomfortable with his ventilator yesterday but thankfully we were able to get that under control and meet our goals of weaning some of his settings. Today, they will not be weaning any more vent settings as his lungs are not ready.
We are still waiting on cultures from his blood and fluid off of his lungs.
They will begin trying feeds today at a slow rate to put something in his gut.
Dialysis is supporting him nicely and he is almost to his dry weight.
He is on track to get his stem cell boost next week.
Please continue praying for his lungs, kidneys, fungal infection, bkv, and a day of steps in the right direction. #landensstory
Keep on praying!